Esmaye’s Story

POTS, neurocardiogenic syncope, autonomic dysfunction, scoliosis, hEDS

Hi my name is esmaye, I developed multiple cronic illnesses at a young age. We discovered I have POTS, neurocardiogenic syncope, and autonomic disfunction a few years ago. They believe I developed it from when I had mono as a young child. Everyday I struggle with simply standing. I pass out and have seizures that we belive are linked to my autonomic dysfunction. I have scoliosis, and I'm a dancer and it causes severe pain. I also have hEDS, and I've injured myself many times due to not have strong cartilage. I also have endometriosis, every month I go through agonizing pain that has put me in the hospital. I was told for years all of it was just because of my anxiety, but I listened to my gut because I new it wasn't. I'm currently trying to get a diagnosis for my tics, they are unsure of what it is at the moment.