Lynne’s Story

APS, Chronic Fatigue, Raynaud’s, Chronic Migraines, Perthes Disease

Hi I’m Lynne from Scotland I have Antiphospholipid syndrome (APS), Myalgic Encephalomyelitis also known as chronic fatigue syndrome, raynauds and chronic migraines. I also have perthes disease it isn’t considered a chronic illness because it isn’t supposed to be a long term condition but I am apart of the small percentage that will be affected by it for the rest of my life. I was diagnosed with raynauds when I was 4 because of symptoms I had had since I was born like raised inflammation. I was then diagnosed with perthes disease when I was 6 after me constantly limping and complaining about having a sore hip. When I was 12 I was diagnosed with myalgic Encephalomyelitis syndrome. This can lay dormant in your body for years and when I got covid for the second time is when I realised that my pain wasn’t going away. ( my younger sister, aunt and uncle have M.E as well) I was 13 when I was told I had suspected chronic migraines but they still say they can’t confirm or deny Bex it could be possibly be other symptoms of my M.E. Finally when I was 15 I was diagnosed with Antiphospholipid syndrome after multiple blood tests, 2 mri’s and a ECG. Let’s just say I have had countless nights in hospital and referrals to specialists.